Raising Grace All that we see or seem, is but a dream within a dream.

Gracie’s first birthday was Wednesday.  I took the day off of work to spend with my family.  We celebrated her birthday by taking her to have her 1 year pictures done.  They were the best set of pictures she’s taken so far.  She’s a little ham, most definitely.

The day was very bittersweet.  It has been a very trying, interesting, wonderful, and scary year.  The loss of Benjamin has been difficult for us, but watching Gracie grow into a little person has tempered that loss to more of a dull ache.  Still, there were not many people who mentioned Benjamin on Wednesday.  I guess people just assume we’ve moved on and what’s the use in talking about a dead baby?  Not only that, but it’s an uncomfortable topic and most people don’t know what to say.

We had lunch after Gracie’s pictures and then drove to the cemetery.  I wanted to place sunflowers at his marker for him, especially since the last time we were there, I wasn’t able to (the florist in the parking lot of the memorial park was closed). I went into the florist and asked for a bouquet of 4 sunflowers and one bouquet of one sunflower. I bought two pinwheels, one for Benjamin and one to take home for Gracie’s birthday. I placed the 4 sunflowers, representing the four of us, at his side and Michael put the pinwheel in so it would stay and blow in the wind. I cried. I looked up at the deep blue shade of the sky and wished things were different. It’s not fair that I have to place flowers at the foot of my son’s grave instead of getting to know him and wondering how different or similar he would have been to Gracie.

I never realized it would hurt this much.  The week leading up to Gracie’s birthday has left me feeling “off.”  I know why.  It wasn’t until about a week before I went into labor that I finally started to feel Benjamin move around.   I also was able to hear his heart beat every day.  I listened attentively to it, looking for any indication that his heartbeat was deteriorating.  We were told by a pediatric cardiologist that Benjamin would not make it to full term, due to Ebstein’s anomaly (a tricuspid valve defect).  So, every time I heard his heart beating, I knew he was OK inside me.  Inside me, he was alive and thriving.  I also knew that when the time came, he would either perish inside me, or he would perish outside.  I refused to think about it.  I didn’t want to even consider a name for him.  It wasn’t until about three days before I went into labor that we chose a name.  Benjamin Kristian.  We didn’t even come up with a girl’s name.  I think we just knew he was a boy.

All the time I had been able to feel Gracie kick and move jab me with her foot, I never could feel Benjamin.  But, when I did, it was mostly bittersweet.  I knew his movement wouldn’t last forever and I knew I would never be able to watch him grow up.

It’s been a year now.  Gracie has started babbling and is now able to say “Da Da.”  She’s crawling, pulling herself up on everything, and giving us her opinion when she doesn’t like something.  For every milestone Gracie accomplishes, Benjamin’s memory is right beside her.

To help keep his memory alive, I’ve found happiness in painting memory boxes for the hospital, as well as making jewelery.  Maybe someday, Gracie can help me make things in honor of Benjamin’s memory, too.

We have her big birthday party coming up next weekend.  It’s a bit late this year because of her bout with pneumonia, but that’s OK.  Thankfully, the weather looks like it will cooperate. (not too hot, and not too cold).

As a part of an “assignment” I was given, for the next two weeks, I am to recall three small pleasures  I have experienced throughout the day.

Here is Day 1:

1.  Gracie’s morning smiles.

One of my favorite times of the day is when I go in and wake Gracie up to feed her.  She hardly ever fusses and always has a smile on her face.  Her smile brightens my day, even if I’m running late, am tired and cranky, or just generally down.

2.  Hummingbird feeder.

Hummingbirds have a lot of meaning for me.  We chose a hummingbird to go on our son’s grave marker.  It was the only marker that stood out to us as something we thought would represent Benjamin the best.  Since he was so small when he was born (1lb. 15 oz.), and hummingbirds are also incredibly small, we thought the choice fitting.  The feeder is an endless source of joy for me.  The hummingbird who has taken up residence with our feeder (they’re very territorial birds, after all) allows us to get rather close–close enough to almost reach out and touch.

3.  More daylight in the day.

As much as I hate Daylight Savings time in the spring (we lose an hour of sleep!), I do enjoy the extra hour of daylight in the afternoons.  It’s nice to come home and have more time to spend outside.  Once my foot heals (I bashed my toe into Gracie’s swing), we’ll start taking walks in the evening.